Jones,
Thanks for the education and forum. I was wondering what kind of tests do they do to confirm APD? If it is confirmed what can they do for you? I have already perfected lip reading, note taking, close caption watching and repeating what I hear to people trying to communicate with me.
M.Ann
Thanks for the education and forum. I was wondering what kind of tests do they do to confirm APD? If it is confirmed what can they do for you? I have already perfected lip reading, note taking, close caption watching and repeating what I hear to people trying to communicate with me.
M.Ann
posted by:
|
|
Unsubscribed |
-
Re: I made it!
Sat, June 4, 2005 - 11:50 PMHi Mary!
Yesterday I finally completed my diagnostic session with Judith Paton which took 2.5 hours. This was the same thing we put our daughter through, although I had unfortunately been unable to go to her appt. with her. It consisted of sitting in a little sound room with headphones, while she operated controls on the outside which generated various sounds for me, to which I was supposed to respond in various ways depending on the test.
The following list is technical and frankly I'm still getting up to speed on what it means, but maybe it will be useful to you. The detailed test summary sheet she provides in the report (which I've only seen for my daughter so far as Judith is still completing mine) includes a wide range of stuff:
Singing response PPS (Pitch Pattern Sequencing)
CES (Competing Environmental Sounds) & Sound Patterns
TCST (Time Compressed Sentence Test)
Dichotic Competing Sentences
Sound Blending & Phonemic Synthesis
Filtered Speech Words
SSW (Staggered Spondaic Word)
Speech discrimination in ipsilateral noise
What can be done really depends on what's happening in your particular situation, but for me her recommendations were focused on central hearing "loss" (not the same as what most people identify as hearing loss), abnormal auditory perception (hyperacusis), executive function (not really related to APD) and non-auditory information processing (again, not really related, but observed). Her recommendations were specific to these areas and this will always very according to what's actually going on.
There's no magic bullet, but some things can make a difference, including Auditory Integration Training (AIT), physical activities which require frequent crossing of the midline (e.g. occupational therapy) and Neuro-linguistic Programming (NLP). I would caution you with NLP however, as it's still a little narrow from my point of view, but it can certainly have benefits.
You are already doing some of the things that people with APD do. Personally, I can't rely much on note-taking in "realtime" situations because I get too distracted by the process of trying to process and write and as a result end up missing even more of what's being said, but I really like the speech reading idea. Interestingly, a long time before I began to suspect any kind of physiological problem, I got into the habit of preferring subtitles even in English-language movies and such, as I found I understood what was happening much better. Repeating information back is huge, too, and getting people to put things in writing - those two things (and sheer acting!) have been my most important tools.
I feel really good, today, about having gotten through the auditory processing diagnosis. There's a fair amount of investigative work to be done in the areas of non-auditory information processing, but this is one piece of the puzzle I feel I'm finally getting a handle on.
Hope this has been helpful, and keep me posted if you decided to see Judith Paton! -
-
Re: I made it!
Sun, June 5, 2005 - 12:02 AMI forgot that the other side of the remediation thing includes educating and training the people around you. Obviously this is not very realistic with strangers and such, but for closer friends and family it is worthwhile to devise simple, digestible communication and education strategies. It takes time and patience - most people I know who do not struggle with anything like this have a surprisingly (to me) difficult time understanding the complexity and gravity of this sort of thing. Hence the 'invisible' label attached to APD and other disorders.
This is about as specific as I can be here today, as I'm still absorbing and making plans, but I just want to point out that ultimately the burden is best handled when shared amongst the people you love and trust. -
-
Unsu...
Re: I made it!
Sun, June 5, 2005 - 9:36 PMJones,
I hear you (no pun intended ha ha). I grew up with hearing impaired parents and it was interesting to see the way they differed in handling it. My mother (who had 8 children) learned to just nod her head and smile. I knew she didn't hear me but I think she just didn't have the energy to lip read and double check everything people were saying to her. I found it annoying. My father on the other hand would say "WHAT?" really loud all the time and get frustrated with you. I found that annoying too. Wouldn't you think a person with my experience would be extremely patient at this point dealing with someone hearing impaired? I mean here I am impaired myself and it annoys me when people in my immediate family (husband and kids) come into a room talking to me or talk to me from behind or during loud movies etc. when they know from years of experience that I won't be able to hear them. It is exhausting to constantly look into the eyes and lip read everyone that says something to you. It puts a person in a very recessive position and/or having to use other parts of your body to try and hear like when you hold your hand and cup it around your ear trying to make a difference or if nothing else having that hand at your ear serve as a reminder to the person who is talking to you to speak louder. I hate having to constantly explain that I can't hear well and then people try to accomodate you but they usually amplify the first sentence or two only to go back to what feels like a normal voice tone for them.
With all this, I still get annoyed with people who have hearing losses. Wouldn't you think I'd be more sympathetic? It stikes me as strange but I can't deny it. I think hearing loss is frustrating for both parties, and I guess if you don't live with it you really have no idea how much it effects a person.
I had an audiologist say, "you must be so exhausted using so many parts of your body to hear". That was the most intelligent thing I heard from the medical community. It told me she got it.
With close captioning, I can read much faster than I can hear and I have always been a slow reader.
Thanks for all your time and sharing so much with me, I appreciate it. I am going to run those test by my friend and see what he thinks. He didn't want me to see anyone concerning APD until he made sure they knew what they were doing. I guess it is a highly specialized field. I will let you know if he gives me a thumbs up or not.
Sorry for rambling on so much.
Mary Ann -
-
Re: I made it!
Tue, June 7, 2005 - 11:05 AMWhen you go to your friend, be sure to mention there were other tests on Judith's form which she opted not to do, with me. When I have more time I can send those your way as well. I have a feeling that if your friend asks around, he may find that she is highly regarded in the medical community as far as CAPD goes. At least, I see her name all over the place and people always mentioned her first whenever I asked. Here are a couple of sites pertaining to her and her work:
www.ldonline.org/ld_indept...paton.html
www.ldonline.org/ld_indept...rking.html
Another link, to an article I'm trying to clean up on Wikipedia (still reads more like a pamphlet and needs editing help):
en.wikipedia.org/wiki/Audi...g_disorder
-
-
-
