First post. My kid and I are both recently diagnosed with CAPD, and I thought I'd try to get a tribe going to see how other people are doing, and how you deal with your situation. I'm especially curious to hear about adults who have been diagnosed after their prime. How do you cope? What's most difficult, or easiest?
posted by:
Ffortiwn
Oregon
  • I'm 35 and was diagnosed just a few months ago. Well, I was given an informal diagnosis of CAPD by my ENT dr, mainly because we decided that the formal testing would be wasteful if the dr and I were pretty sure of CAPD anyway.......there is formal testing available near by. The interesting thing is that they sent me away telling me that there really wasn't much anyone could do.....and now I find this tribe......I may be asking a lot of questions.

    I have found that lowering my stress levels (getting some toxic people out of my life) has helped immensely. I make sure that people who talk to me are looking at me.

    The most difficult problem I have is that I work in a huge warehouse of a building --and I'm an IT person on the computer all day. ONe thing I have found (quite by accident) was that it is extremely helpful to wear headphones. I don't necessarily play music or anything, but there are SEVERAL interesting benefits. 1. It is a reminder to me that I need to accommodate for the CAPD. I tend to forget about it and get frustrated. 2. The headphones help to filter out some noise. 3. This was the interesting one---wearing my headphones makes other people come around and get my attention visibly and they make sure I can hear them. That part was great. (Right now, I am wearing them and they aren't plugged into anything!!!)

    I find that now that I know what the problem can be attributed to, I don't get as upset or frustrated. The additional stress makes it worse. Many times, I find that I just nod and don't worry about getting all the details. If it's important, I ask for a repeat.

    I'm really happy to know there is a tribe on CAPD.
    • Unsu...
       
      Tehara,

      Good for you! The headphones idea, I knew what you were going to say before you did. It would give people common understanding that you are listening to something else so THEY have to work to get your attention, rather than you having to be vigilant to anything said and everyone around you. Smart lady!

      I don't know for sure if I have CAPD but I fit all the symptoms. I have learned to lip read pretty well and have tried to be vigilant to everyone around me, it sure makes socialization exhausting and at times uncomfortable. You never know if what you are responding to makes sense because you are assuming you heard the original comment clearly. I get tired of saying, "what?" all the time. I don't have the advantage of headphones but at times I cup my hand behind my ear and even if it doesn't help bring the sound in, it serves as a visual to people to speak up. Funny though now my husband is saying, "what" a lot and it is hard not to get annoyed with having to constantly repeat myself. Funny.

      Mary Ann
    • Hey Teharra,

      Thanks for coming here. I've been lax on Tribe.net for a while now.

      I was amused to read your comments about headphones at work. I once brought some in to finish up a great radio program I'd been listening to on MP3, and once it was done I realized how fantastic if felt to keep the earbuds in without anything playing. So peaceful! My ability to focus (in an open cube IT department) increased ten-fold.

      I'll post a couple of links to headphone sites that might be useful to CAPD folks.

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